In development — in discovery with clinicians and commissioners

Transforming Paediatric Palliative Care through Data Analytics

Building the UK's first analytics platform dedicated to children's palliative care — capturing and analysing population-level data to improve care for children and young people with life-limiting conditions, designed to integrate with modern electronic health records.

Make a Connection See the Platform

Aims of Project

Real-time EHR Integration

Age Group 0–19 Years

Population and Local Trust Level Prevalence Data

Complexity of Needs Assessment

Planned Capabilities

What we're building

EHR Integration

Designed to pull structured palliative care data directly from the electronic health record — linking clinical records to population-level analytics without disrupting existing workflows.

Population-Level Analytics

Dashboards designed to show patient diagnostic groups, breakdowns by trust area and deprivation, level of complexity, stage of illness, and hospital admission rates — giving your team an instant population-level picture.

Built-in Tracking for Service Development

Designed to identify unmet areas of need, monitor quality-of-life measures over time, and build the evidence base your team needs to develop, justify and improve palliative care services across your trust.

Built to NHS Standards

Data Safety & Security

Patient data demands the highest standards of clinical safety, security and governance. Short Lives Analytics™ is being architected from the ground up to meet NHS compliance requirements — not as a late-stage addition, but as a core design principle.

Clinical Safety

Adherence to NHS clinical risk management standards DCB0129 and DCB0160, ensuring hazards introduced by health IT systems are systematically identified, assessed and controlled throughout development.

NHS Data Security

Designed to meet DSPT requirements — the annual operating standard for organisations handling NHS patient data, covering technical, governance and organisational controls.

DTAC

Aligned to the Digital Technology Assessment Criteria — the NHS and social care gateway for digital health tools — covering clinical safety, data protection, technical security, interoperability, and accessibility.

HL7 FHIR

Built on HL7 FHIR — the NHS-mandated healthcare data exchange standard — using correct clinical profiles, terminology bindings, and NHS-approved coding systems including SNOMED CT and ICD-10.

ISO 27001

Targeting ISO 27001 certification — the internationally recognised standard for information security management — to provide assurance over how patient data is stored, accessed and protected.

UK GDPR

Patient data is processed only for defined clinical and analytical purposes under UK GDPR. Data minimisation, pseudonymisation, and appropriate retention policies are built into the platform architecture.

Compliance by design

Clinical safety, data governance and interoperability are core architectural requirements from day one — not afterthoughts. Every integration with electronic health record and NHS infrastructure is designed to meet the standards expected of clinical systems operating within the NHS.

Platform Review

See it in action

Explore the interactive demonstration dashboard — filter by health trust, age group, diagnostic category, stage of illness, and complexity of need across a modelled paediatric palliative care cohort.

shortlivesanalytics.com/dashboard

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Short Lives Analytics™

— Dashboard Demo

Demonstration data only — anonymisedBack to site

Filters:Clear all

Total Patients

2,509

matching current filters

Advance Care Plan

have ACP in place

Known to Specialist

specialist palliative care

High Polypharmacy

14%

on 10 or more medicines

Most Deprived Quintile

34%

in deciles 1-2 (NIMDM 2017)

Unplanned Admissions

2,929

cohort total, last 12 months

Antenatal Cohort

life-limiting fetal diagnoses

NI Health Trust Distribution

Patient countAvg. deprivation

Click a trust to filter · click again to deselect

Patients by Diagnostic Category

Click a bar to filter

Neurological

320

Congenital

773

Metabolic

185

Oncology

226

Cardiovascular

135

Respiratory

198

Perinatal

230

Other

442

TfSL Category of Care by Age Band

Click a segment to filter by category

ALife-threatening BLife-shortening C Severe medical complexity

AntenatalUnder 11-56-1011-1516-19

Stage of Illness

Click a slice to filter

2,509

children

Stable (2437)Unstable (48)Deteriorating (22)Dying (2)

Launch Interactive Dashboard

Demonstration data only — fully interactive, no real patient data

Who We Are

The person behind the project

Dr David Graham

Founder & Consultant Paediatrician · Co-chair, Northern Ireland Paediatric Palliative Care Network

I am a Consultant Paediatrician with a specialist interest in Paediatric Palliative Care and Co-chair of the Northern Ireland Paediatric Palliative Care Network, with a deep commitment to improving the lives of children and young people with life-limiting conditions and their families. Throughout my clinical career I have seen first-hand how fragmented and incomplete data makes it incredibly difficult to understand the true scale and complexity of need — both within individual trusts and across populations.

Short Lives Analytics™ was born from that frustration. My goal is to build a platform that gives clinicians, teams and commissioners the population-level insight they need to plan services, demonstrate impact, and ultimately deliver better, more equitable care for some of our most vulnerable patients.

I am proud to be developing this project with the support of the NHS Clinical Entrepreneur Programme — an initiative that empowers NHS clinicians to turn ideas into real-world solutions that benefit patients and the wider health system.

Interested in Short Lives Analytics™? Let's make a connection.

We want to hear from across the system — whether you are an NHS trust interested in piloting the platform, a university exploring research collaboration, an integrated care board or the Department of Health considering commissioning opportunities, or a clinician or family wanting to share what matters most.

NHS Trust PilotsUniversity ResearchIntegrated Care BoardsDept of HealthClinicians & Users

No commitment required. GDPR compliant. NHS data security standards.

Prefer to connect directly? Find Dr David Graham on LinkedIn →