Transforming Paediatric Palliative Care through Data Analytics
Building the first dedicated platform to capture and analyse population-level data and improve care for children and young people with life-limiting conditions — designed to integrate with Epic EHR.
Aims of Project
Planned Capabilities
What we're building
EHR Integration Epic
Designed to pull structured palliative care data directly from Epic — linking clinical records to population-level analytics without disrupting existing workflows.
Population-Level Analytics
Dashboards designed to show patient diagnostic groups, breakdowns by trust area and deprivation, level of complexity, stage of illness, and hospital admission rates — giving your team an instant population-level picture.
Built-in Tracking for Service Development
Designed to identify unmet areas of need, monitor quality-of-life measures over time, and build the evidence base your team needs to develop, justify and improve palliative care services across your trust.
Built to NHS Standards
Data Safety & Security
Patient data demands the highest standards of clinical safety, security and governance. Short Lives Analytics™ is being architected from the ground up to meet NHS compliance requirements — not as a late-stage addition, but as a core design principle.
Clinical Safety
Adherence to NHS clinical risk management standards DCB0129 and DCB0160, ensuring hazards introduced by health IT systems are systematically identified, assessed and controlled throughout development.
NHS Data Security
Designed to meet DSPT requirements — the annual operating standard for organisations handling NHS patient data, covering technical, governance and organisational controls.
DTAC
Aligned to the Digital Technology Assessment Criteria — the NHS and social care gateway for digital health tools — covering clinical safety, data protection, technical security, interoperability, and accessibility.
HL7 FHIR
Built on HL7 FHIR — the NHS-mandated healthcare data exchange standard — using correct clinical profiles, terminology bindings, and NHS-approved coding systems including SNOMED CT and ICD-10.
ISO 27001
Targeting ISO 27001 certification — the internationally recognised standard for information security management — to provide assurance over how patient data is stored, accessed and protected.
UK GDPR
Patient data is processed only for defined clinical and analytical purposes under UK GDPR. Data minimisation, pseudonymisation, and appropriate retention policies are built into the platform architecture.
Compliance by design
Clinical safety, data governance and interoperability are core architectural requirements from day one — not afterthoughts. Every integration with Epic EHR and NHS infrastructure is designed to meet the standards expected of clinical systems operating within the NHS.
Platform Review
See it in action
Explore the interactive demonstration dashboard — filter by health trust, age group, diagnostic category, stage of illness, and complexity of need across a modelled paediatric palliative care cohort.
Total Patients
2,509
Advance Care Plan
9%
Known to Specialist
2%
High Polypharmacy
14%
NI Trust Distribution
By Diagnostic Category
Quality Indicators
Patient Registry (sample)
Demonstration data only — fully interactive, no real patient data
Who We Are
The person behind the project
Dr David Graham
Founder & Consultant Paediatrician · Co-chair, Northern Ireland Paediatric Palliative Care Network
I am a Consultant Paediatrician with a specialist interest in Paediatric Palliative Care and Co-chair of the Northern Ireland Paediatric Palliative Care Network, with a deep commitment to improving the lives of children and young people with life-limiting conditions and their families. Throughout my clinical career I have seen first-hand how fragmented and incomplete data makes it incredibly difficult to understand the true scale and complexity of need — both within individual trusts and across populations.
Short Lives Analytics™ was born from that frustration. My goal is to build a platform that gives clinicians, teams and commissioners the population-level insight they need to plan services, demonstrate impact, and ultimately deliver better, more equitable care for some of our most vulnerable patients.
I am proud to be developing this project with the support of the NHS Clinical Entrepreneur Programme — an initiative that empowers NHS clinicians to turn ideas into real-world solutions that benefit patients and the wider health system.
Interested in Short Lives Analytics™? Let's make a connection.
We want to hear from across the system — whether you are an NHS trust interested in piloting the platform, a university exploring research collaboration, an integrated care board or the Department of Health considering commissioning opportunities, or a clinician or family wanting to share what matters most.
No commitment required. GDPR compliant. NHS data security standards.
Prefer to connect directly? Find Dr David Graham on LinkedIn →